The weekend before
my first chemo session my husband whisked me away on a surprise spa break. It
was meant to be a relaxing, let’s-forget-about-all-that-cancer-crap for 24
hours… Alas, cancer’s shadow cast long and dark over even the most lightly
scented of spa treatment rooms. I was asked to fill out a health questionnaire,
you see. It’s a standard procedure. I’ve completed my fair share over the years
but up until that point I’ve never had to tick the first box in the ‘have you
ever had any of the following conditions’ section before.
As I handed my
completed questionnaire back to my masseuse I found myself blushing and
apologising. Apologising for that one solitary tick. For having cancer at an
age when it’s more likely for me to be hit by a bus or to disappear somewhere
over the Atlantic in a blaze of burning debris.
We exist though. We
few, we unhappy few, we band of chemo brothers (to misquote Shakespeare). We’re
all in our 20s, 30s and 40s and we’re generally found clumped together in a
cancer group that people find hardest to accept. Perhaps our diagnoses are a
little too close for comfort? After all, we’re the neighbours, the best
friends, the mums at the school gate at 3pm. Tripped up in our prime, we
have so much to live for and everything to lose.
I hear the slight
pause on the line when I call my chemo unit and the nurse requests my date of
birth to access my records. I see the raised eyebrow on my GP’s face when I
enter his room to ask for another prescription for anti-sickness tablets. He
was told to expect a bowel cancer patient but I don’t fit the profile. I have
no grey hairs other than those bequeathed to me by my deliciously truculent
four year old.
I make people
panic. I can see their thoughts scatter like frightened rabbits when I tell
them about my diagnosis. I’m asked to repeat my symptoms again and again as
they silently compare and contrast them to their own lingering health ailments.
Young adults are
health anxiety addicts. We’re internet savvy, we scour the sites for similar
symptoms, yet we’re secretly cosseted by our age. I see anxious, undiagnosed
people time and time again on cancer forums, ones that are worried enough to
Google their symptoms but not worried enough to push for a colonoscopy. It’s
almost like they’re unwilling to accept that something terrible might actually
be wrong with them because statistics have told them it’s ok.
Statistics are not
individuals. I learnt that the hard way the day after my Stage 3 diagnosis. To
quote someone on another cancer forum recently, “the first rule of advanced
bowel cancer survival is don’t Google advanced bowel cancer survival.” I’m fit
and healthy, or so I thought. I have two children under 6. I shouldn’t have
bowel cancer but I do.
And I’m not alone.
2500 young adults are diagnosed with bowel cancer every yearin the UK. 2500 men
and women under 50. Young adults with young children like myself, or those that
are facing an agonising choice between survival or starting a family.
Never 2 Young is the latest Bowel Cancer UK campaign
and I want to shout it from the rooftops. Time and time again I hear stories
similar to my own, of a year long wait for hospital referrals. Of colonoscopy
delays. Scotland has recently lowered the bowel cancer screening programme age
from 60 to 50. It’s a start but it’s no help to someone like me, a 37-year-old
Englishwoman who suffered unexplained bleeding and a prolonged change in bowel
habits for six months. And no it wasn’t piles, GPs 1 to 6, you who summarily
dismissed me before I finally lost my patience and paid to see a private
consultant.
It doesn’t help
that bowel cancer is somehow seen as mean and dirty either. It’s the cancer
that no one really wants to talk about, an embarrassing uncle that you don’t
invite at Christmas for fear of upsetting that delicate dinner table
equilibrium, yet it’s the UK’s second biggest cancer killer. Young
adults need to be more aware of their susceptibility to this disease. It’s on
the rise in our peer group and no one seems to know why.
Chances are you
don’t have bowel cancer but wouldn’t you rather know? Caught early and you’re
looking at a complete cure. Caught later and the odds for survival start
tumbling. To prevent that I’m willing to be your comfort blanket. I’ll repeat
my symptoms over and over again to anyone who wants to listen if it means that
fewer young adults are diagnosed late. Please don’t be embarrassed. Visit your
GP and keep returning if needs be.
It might be the
most important call you ever make.
Written by Catherine @kidsversuscopy
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